Psychscribe

Yup, that’s been my title for the past year or so, since we began planning my daughter’s wedding. We’ve been planning the fairy tale since she was a little girl, and so excited to get started once she got engaged. Also, for the past year, my lupus has been getting worse. More work obligations cancelled. More social plans cancelled. More pain. More bed.  I cannot make any commitments. Everything is tentative. Living a tentative life is stressful, and stress makes lupus worse.

We are coming down the wire here and I only pray that I will get a remission in time for the September wedding.  I’ve already had to disappoint her, and me, by  canceling some plans with her. It looks like today will be another one, since I’m in a lot of pain though fighting it. We are supposed to go for her first bridal fitting, and also to a make up trial. This is supposed to be a fun  thing that moms and daughters do together.  I feel so terrible, terrible, terrible to have to disappoint her (and me) again.

I try to tell myself its all in my mind, but its not. Its in my bones and in my foggy brain. Yesterday, I had to ask my sister to drive me to the pharmacy and to the lab for a blood draw. I NEVER ask people for help…yet today I am actually considering driving up to my daughter’s to do what we had planned. I simply cannot bear to disappoint her…

But then I think, I almost died four years ago when I had my stroke. And  I think, one of her oldest friends lost her mother to cancer just two months before the wedding. Can you imagine how sad that was? So then I think, we’re fortunate that I’m alive and able to share the wedding experience with her, albeit at a distance.  And as my father used to say, you have to roll with the punches….